Tag: Rare Disease Day

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Recent Related Articles to Rare Disease Day

Microsoft Teams with Shire and EURORDIS to Expedite Rare Disease Diagnosis

Added to Collection on: 2018-02-20 02:56:15

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Health
Medicine
Health care
Primary care
Epidemiology
Medical terminology
Medical diagnosis
Disease
Rare disease
European Organisation for Rare Diseases
Rare Disease Day

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How Will You Show Your Stripes in 30 Days?

Added to Collection on: 2021-01-28 18:33:45

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Rare disease
Medicine
Rare Disease Day
National Organization for Rare Disorders
Disease
Articles
Rare diseases
Health sciences
United States

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Fabry Disease Advocacy

Added to Collection on: 2021-02-15 15:21:10

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Health
Articles
Medical terminology
Rare diseases
Health advocacy
Health promotion
Patient advocacy
Fabry disease
Patient participation
Rare Disease Day
Rare disease
Chronic condition

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Importance of Advocacy for LEMS Patients

Added to Collection on: 2021-02-15 19:07:30

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Health
Medicine
Medical terminology
Lambert–Eaton myasthenic syndrome
Health advocacy
Patient advocacy
Patient participation
Myaware
Neuromuscular junction
Health care
Rare Disease Day
Disease

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Rare Disease Day – why it's important to show your stripes

Added to Collection on: 2021-02-23 12:22:12

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Medicine
Health
Medical terminology
Immune system disorders
Infectious causes of cancer
Rare disease
Castleman Disease Collaborative Network
Rare Disease Day
European Organisation for Rare Diseases
Rare diseases
Castleman disease
Disease

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Rare Disease Day: Health advocacy groups press for govt policy, say India's numbers unknown

Added to Collection on: 2021-02-27 06:22:30

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Medicine
Health sciences
Health
Medical terminology
Rare diseases
Prevention
Rare disease
Newborn screening
Disease
Non-communicable disease
Medical genetics
Rare Disease Day
India

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Learning from the rare disease community - The Parliament Magazine

Added to Collection on: 2022-02-25 08:12:55

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Health sciences
Life Sciences
Health
Rare disease
European Organisation for Rare Diseases
Rare Disease Day
Rare diseases
Orphan drug
Disease
Pharmaceutical industry
Patient advocacy

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Rare diseases need govt attention - The Express Tribune

Added to Collection on: 2024-03-02 10:14:56

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Neurogenetic disorders
Neuromuscular Disorders
Motor neuron diseases
Rare disease
Rare diseases
Muscle atrophy
Rare Disease Day
Pakistan
Roche Pakistan Limited

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The Power of Patient Voices in Rare Disease Innovation - MassBio

Added to Collection on: 2025-03-11 21:20:22

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Rare disease
Rare Disease Day
Lori Trahan
Lexi Marshall
John Wilcox

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