Tag: European Organisation for Rare Diseases

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Recent Related Articles to European Organisation for Rare Diseases

Microsoft Teams with Shire and EURORDIS to Expedite Rare Disease Diagnosis

Added to Collection on: 2018-02-20 02:56:15

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Health
Medicine
Health care
Primary care
Epidemiology
Medical terminology
Medical diagnosis
Disease
Rare disease
European Organisation for Rare Diseases
Rare Disease Day

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Importance of Advocacy for aHUS

Added to Collection on: 2021-02-15 15:11:15

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Health
Medicine
Medical specialties
Blood disorders
Rare diseases
Atypical hemolytic uremic syndrome
Syndromes
Acquired hemolytic anemia
Eculizumab
Ahus
European Organisation for Rare Diseases
Hemolytic–uremic syndrome

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Rare Disease Day at NIH, Set for March 1, Growing Year by Year

Added to Collection on: 2021-02-22 12:56:15

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National Institutes of Health
Branches of biology
Rare diseases
Life Sciences
Biology
Biotechnology
Office of Rare Diseases Research
Rare disease
European Organisation for Rare Diseases
National Center for Advancing Translational Sciences
Rare Diseases Clinical Research Network
Gene therapy

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Rare Disease Day – why it's important to show your stripes

Added to Collection on: 2021-02-23 12:22:12

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Medicine
Health
Medical terminology
Immune system disorders
Infectious causes of cancer
Rare disease
Castleman Disease Collaborative Network
Rare Disease Day
European Organisation for Rare Diseases
Rare diseases
Castleman disease
Disease

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1st International Conference on Rare Diseases "Building the path from Diagnosis to Access"

Added to Collection on: 2021-03-12 11:15:00

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Health sciences
Health
Rare diseases
Rare disease
European Organisation for Rare Diseases
Disease
European Federation of Pharmaceutical Industries and Associations
Health care
Infection
Pharmaceutical industry
Genetic Alliance UK
Center of expertise for rare diseases
Greece

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National Organization for Rare Disorders (NORD) Announces Kay Holcombe as New Board Chair ...

Added to Collection on: 2021-05-18 12:00:00

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Food and Drug Administration
Rare disease
National Organization for Rare Disorders
Reagan-Udall Foundation
Patient advocacy
Orphan Drug Act
Health in the United States
Health
European Organisation for Rare Diseases
Kay Holcombe
Dennis Jackman

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Rare diseases: Tackling unmet needs and evolving the orphan drug environment

Added to Collection on: 2021-07-05 08:03:45

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Life Sciences
Biotechnology
Health
Rare disease
European Organisation for Rare Diseases
Alexion Pharmaceuticals
Orphan drug
Genetic Alliance UK

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AllStripes lands $50M for tool that helps patients share medical data | MobiHealthNews

Added to Collection on: 2021-08-24 18:33:45

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Articles
Medicine
Health
Rare disease
European Organisation for Rare Diseases
Medidata Solutions
Disease

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Learning from the rare disease community - The Parliament Magazine

Added to Collection on: 2022-02-25 08:12:55

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Health sciences
Life Sciences
Health
Rare disease
European Organisation for Rare Diseases
Rare Disease Day
Rare diseases
Orphan drug
Disease
Pharmaceutical industry
Patient advocacy

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Data sharing holds key to progress on rare diseases in Europe | Financial Times

Added to Collection on: 2022-02-28 06:31:55

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Branches of biology
Life Sciences
Neurological disorders
Motor neuron diseases
Rare disease
Neurogenetic disorders
Neuromuscular Disorders
European Organisation for Rare Diseases
Orphan drug
Disease
Muscle atrophy
Spinal muscular atrophy

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