Data sharing holds key to progress on rare diseases in Europe | Financial Times

Retrieved on: 2022-02-28 06:31:55

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Branches of biology

Life Sciences

Neurological disorders

Motor neuron diseases

Rare disease

Neurogenetic disorders

Neuromuscular Disorders

European Organisation for Rare Diseases

Orphan drug

Disease

Muscle atrophy

Spinal muscular atrophy

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Data sharing holds key to progress on rare diseases in Europe | Financial Times. View article details on HISWAI: https://www.ft.com/content/02f890f0-ab6b-424e-80a9-953015cdc51a

Excerpt

“The ERNs represent the biggest innovation in terms of care for rare ... which can be very high, meaning health systems struggle to pay for them.

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